MoseySusan Posted May 29, 2021 Share #151 Posted May 29, 2021 15 hours ago, Longjohn said: I should be able to climb hills now. Upper body looks like TDF mountain man. Problem is lower body looks the same E-bike will get that taken care of. Meanwhile, rest and let the good cells have a chance against the baddies. Leukemia. They’re looking for leukemia. Lots of prayers. 3 1 Link to comment Share on other sites More sharing options...
Kirby Posted June 1, 2021 Share #152 Posted June 1, 2021 How are you doing, LJ? Link to comment Share on other sites More sharing options...
Longjohn ★ Posted June 1, 2021 Share #153 Posted June 1, 2021 3 minutes ago, Kirby said: How are you doing, LJ? Not too bad. Seeing lots of doctors this week. Hoping they can get this sorted out. I was giving Oreo some attention last night and he was purring and seemed to be enjoying it and all of a sudden he swatted my arm. It bled like crazy for about ten minutes. I read him the riot act. I guess he will be a feed only cat now, I can’t risk any scratches. 5 Link to comment Share on other sites More sharing options...
smudge ★ Posted June 1, 2021 Share #154 Posted June 1, 2021 2 hours ago, Longjohn said: Not too bad. Seeing lots of doctors this week. Hoping they can get this sorted out. I was giving Oreo some attention last night and he was purring and seemed to be enjoying it and all of a sudden he swatted my arm. It bled like crazy for about ten minutes. I read him the riot act. I guess he will be a feed only cat now, I can’t risk any scratches. Just put a towel on your arm or something like that. Kitty skritches are good for everyone. Link to comment Share on other sites More sharing options...
Longjohn ★ Posted June 1, 2021 Share #155 Posted June 1, 2021 Just now, smudge said: Just put a towel on your arm or something like that. Kitty skritches are good for everyone. Nope, not while I’m on blood thinners and have a low blood count. He had his chance. 2 1 1 Link to comment Share on other sites More sharing options...
Popular Post Longjohn ★ Posted June 3, 2021 Popular Post Share #156 Posted June 3, 2021 Echo yesterday appeared to show improvement on my heart. Blood work for my oncologist found another blood disorder. They ordered a full body X-ray to look for bone legions.. They said many people can live for years with this. 4 1 2 Link to comment Share on other sites More sharing options...
Longjohn ★ Posted June 3, 2021 Share #157 Posted June 3, 2021 My weight has dropped to 152. Owl have to be careful on a windy day. 3 Link to comment Share on other sites More sharing options...
MoseySusan Posted June 3, 2021 Share #158 Posted June 3, 2021 Things are moving the right direction, then? Good news about your heart; although, I cannot think of a person who has more heart than you.💞 Praise God for his mercies are new every morning. 2 1 Link to comment Share on other sites More sharing options...
petitepedal ★ Posted June 3, 2021 Share #159 Posted June 3, 2021 5 minutes ago, Longjohn said: My weight has dropped to 152. Owl have to be careful on a windy day. Can I give you some..you are 3 feet taller than me and 3 pounds lighter 1 Link to comment Share on other sites More sharing options...
Longjohn ★ Posted June 3, 2021 Share #160 Posted June 3, 2021 3 minutes ago, petitepedal said: Can I give you some..you are 3 feet taller than me and 3 pounds lighter That would be nice. On the way home from the oncologist I stopped at the Apple Castle and bought a peck of Empire apples and two chocolate donuts. I ate one apple and both donuts on the drive home. I have another doctor appointment at 1:30 1 Link to comment Share on other sites More sharing options...
petitepedal ★ Posted June 3, 2021 Share #161 Posted June 3, 2021 Are you eating a little every couple of hours...dang..I better buy some tapeworms or something. Link to comment Share on other sites More sharing options...
Rattlecan ★ Posted June 3, 2021 Share #162 Posted June 3, 2021 1 hour ago, Longjohn said: Owl have to be careful on a windy day. That's only an issue if you present enough of a profile to actually catch the wind. Link to comment Share on other sites More sharing options...
Allen ★ Posted June 3, 2021 Share #163 Posted June 3, 2021 2 hours ago, Longjohn said: My weight has dropped to 152. Owl have to be careful on a windy day. I weigh 145. Don’t hold onto ropes, you risk becoming a kite. The trick is to get low and tuck in. Draft off of larger folk like riding in a peloton. 1 Link to comment Share on other sites More sharing options...
MickinMD ★ Posted June 3, 2021 Share #164 Posted June 3, 2021 3 hours ago, Longjohn said: My weight has dropped to 152. Owl have to be careful on a windy day. Have they put you on a food program or given you appetite-enhancing pills so you can keep you weight up? Maintaining weight was an important part of my mother's treatment when she had lung cancer and it extended her life. Link to comment Share on other sites More sharing options...
Longjohn ★ Posted June 3, 2021 Share #165 Posted June 3, 2021 46 minutes ago, MickinMD said: Have they put you on a food program or given you appetite-enhancing pills so you can keep you weight up? Maintaining weight was an important part of my mother's treatment when she had lung cancer and it extended her life. They haven’t, they are already working on several different angles at the same time. I drink Boost. 1 1 Link to comment Share on other sites More sharing options...
Longjohn ★ Posted June 4, 2021 Share #166 Posted June 4, 2021 7 hours ago, Rattlecan said: That's only an issue if you present enough of a profile to actually catch the wind. I have a very large skeleton covered with skin, it could catch the wind pretty easy. 1 2 Link to comment Share on other sites More sharing options...
Airehead Posted June 4, 2021 Author Share #167 Posted June 4, 2021 I recommend adding grits to your diet. Link to comment Share on other sites More sharing options...
Longjohn ★ Posted June 4, 2021 Share #168 Posted June 4, 2021 3 minutes ago, Airehead said: I recommend adding grits to your diet. The cheese and butter grits are not part of a heart healthy diet. I could eat plain grits. Link to comment Share on other sites More sharing options...
Airehead Posted June 4, 2021 Author Share #169 Posted June 4, 2021 4 minutes ago, Longjohn said: The cheese and butter grits are not part of a heart healthy diet. I could eat plain grits. Use skim milk, no butter and parmesan cheese-- because a little of that adds maximum taste. Then pepper and hot sauce 1 Link to comment Share on other sites More sharing options...
Randomguy Posted June 4, 2021 Share #170 Posted June 4, 2021 5 hours ago, Longjohn said: The cheese and butter grits are not part of a heart healthy diet. I could eat plain grits. Are doughnuts part of a healthy diet? Link to comment Share on other sites More sharing options...
Longjohn ★ Posted June 4, 2021 Share #171 Posted June 4, 2021 3 minutes ago, Randomguy said: Are doughnuts part of a healthy diet? No they are not. Someone told me to get two of them. First donuts this year. They caught me in a weak moment, I had just come from the doctor and found out I lost more weight. 1 Link to comment Share on other sites More sharing options...
Airehead Posted June 4, 2021 Author Share #172 Posted June 4, 2021 1 hour ago, Randomguy said: Are doughnuts part of a healthy diet? small treats like that are essential. Any news from the last doctor's appointments? 1 1 Link to comment Share on other sites More sharing options...
Popular Post Longjohn ★ Posted June 4, 2021 Popular Post Share #173 Posted June 4, 2021 1 hour ago, Airehead said: small treats like that are essential. Any news from the last doctor's appointments? She said the results of all the lab work looks good, good kidney function, good iron level, blood count is continuing to be good. She scheduled me back in October unless something else comes up. I still have a crapton of other appointments and they just added a colonoscopy. 🤪 3 2 Link to comment Share on other sites More sharing options...
Airehead Posted June 5, 2021 Author Share #174 Posted June 5, 2021 3 hours ago, Longjohn said: She said the results of all the lab work looks good, good kidney function, good iron level, blood count is continuing to be good. She scheduled me back in October unless something else comes up. I still have a crapton of other appointments and they just added a colonoscopy. 🤪 Keep us in the loop for the other Crapton. Link to comment Share on other sites More sharing options...
Popular Post LoneWolf Posted June 8, 2021 Popular Post Share #175 Posted June 8, 2021 On 6/3/2021 at 9:10 AM, Longjohn said: Echo yesterday appeared to show improvement on my heart. Blood work for my oncologist found another blood disorder. They ordered a full body X-ray to look for bone legions.. They said many people can live for years with this. Lesions, I believe. Anyway, I hope not legions (for we are many). LJ, I'm sorry to hear about all that has gone on. Esther, and now this. But I believe in you. One thing I found out for myself: If you're not finding great reasons to get up some mornings, remember that being able to get up, stick your finger in the Devil's eye, and say "I'm still alive and kicking, you SOB" is worth something. My prayers be with you. For strength when needed, but for peace, which I have found most of us need far more than strength. 1 1 3 Link to comment Share on other sites More sharing options...
Longjohn ★ Posted June 8, 2021 Share #176 Posted June 8, 2021 22 X-Rays taken this afternoon of my bones. Most of my bones you can see without an X-Ray. They could have cut that number in half. 1 Link to comment Share on other sites More sharing options...
Airehead Posted June 8, 2021 Author Share #177 Posted June 8, 2021 That is a lot of extra X-rays Link to comment Share on other sites More sharing options...
Longjohn ★ Posted June 8, 2021 Share #178 Posted June 8, 2021 1 hour ago, Airehead said: That is a lot of extra X-rays My oncologist wanted pictures of all my bones and from every angle. It took 45 minutes. Link to comment Share on other sites More sharing options...
smudge ★ Posted June 9, 2021 Share #179 Posted June 9, 2021 1 hour ago, Longjohn said: My oncologist wanted pictures of all my bones and from every angle. It took 45 minutes. We don't schedule x-rays cuz they are quick. We DO schedule bone surveys because they take so long. Are you glowing tonight. 1 Link to comment Share on other sites More sharing options...
Longjohn ★ Posted June 9, 2021 Share #180 Posted June 9, 2021 19 minutes ago, smudge said: We don't schedule x-rays cuz they are quick. We DO schedule bone surveys because they take so long. Are you glowing tonight. Just a little bit. 1 Link to comment Share on other sites More sharing options...
Ralphie ★ Posted June 9, 2021 Share #181 Posted June 9, 2021 2 hours ago, Longjohn said: Just a little bit. Yes, we see your green aura! Link to comment Share on other sites More sharing options...
Popular Post Longjohn ★ Posted June 9, 2021 Popular Post Share #182 Posted June 9, 2021 Just got a call from my oncologist, no lesions on any of my bones. They were happy. 2 9 Link to comment Share on other sites More sharing options...
Randomguy Posted June 9, 2021 Share #183 Posted June 9, 2021 1 hour ago, Longjohn said: Just got a call from my oncologist, no lesions on any of my bones. They were happy. So can you start riding and kayaking and skydiving again? 1 Link to comment Share on other sites More sharing options...
Longjohn ★ Posted June 9, 2021 Share #184 Posted June 9, 2021 3 minutes ago, Randomguy said: So can you start riding and kayaking and skydiving again? I’m thinking of going kayaking with my brother. He can do the grunt work, I’m still too weak to load the kayaks. 3 Link to comment Share on other sites More sharing options...
Rattlecan ★ Posted June 9, 2021 Share #185 Posted June 9, 2021 2 hours ago, Longjohn said: Just got a call from my oncologist, no lesions on any of my bones. They were happy. Then I guess we should be happy too. 1 1 1 Link to comment Share on other sites More sharing options...
Kzoo Posted June 9, 2021 Share #186 Posted June 9, 2021 2 hours ago, Longjohn said: Just got a call from my oncologist, no lesions on any of my bones. They were happy. 2 Link to comment Share on other sites More sharing options...
Dottleshead ★ Posted June 10, 2021 Share #187 Posted June 10, 2021 On 6/3/2021 at 7:42 AM, Longjohn said: My weight has dropped to 152. Owl have to be careful on a windy day. Banana Splits. 1 1 Link to comment Share on other sites More sharing options...
Ralphie ★ Posted June 10, 2021 Share #188 Posted June 10, 2021 8 hours ago, Rattlecan said: Then I guess we should be happy too. Link to comment Share on other sites More sharing options...
Longjohn ★ Posted June 10, 2021 Share #189 Posted June 10, 2021 8 hours ago, Dottles said: Banana Splits. Don’t I wish, too much artery clogging fat. Link to comment Share on other sites More sharing options...
Kirby Posted June 10, 2021 Share #190 Posted June 10, 2021 2 hours ago, Longjohn said: Don’t I wish, too much artery clogging fat. Not all Banana Splits are bad for you! 2 Link to comment Share on other sites More sharing options...
Airehead Posted June 10, 2021 Author Share #191 Posted June 10, 2021 23 hours ago, Longjohn said: Just got a call from my oncologist, no lesions on any of my bones. They were happy. Great news 3 Link to comment Share on other sites More sharing options...
Longjohn ★ Posted June 12, 2021 Share #192 Posted June 12, 2021 This is snot good. LEFT VENTRICLE: The left ventricle is mildly dilated. Normal myocardial thickness. Severe global hypokinesis is present. Ejection fraction is estimated at 35 %. EF CALCULATED: 44 % RIGHT VENTRICLE: The right ventricle is normal in size. RV systolic function is normal. MISCELLANEOUS: LIMITED VIEWS Type of Study TTE procedure: US transthor echo 2D ltd (SC). Indications: Acute Chronic Systolic Heart Failure. ICD-10: I50.23. Patient Status: Routine Rhythm: Normal sinus rhythmHR: 70 bpmBP: 125/61 mmHg The ejection fraction is the problem. 4 Link to comment Share on other sites More sharing options...
Ralphie ★ Posted June 12, 2021 Share #193 Posted June 12, 2021 Well this stinks. Both acute and chronic? That seems like an oxymoran. They are throwing the book at you. Link to comment Share on other sites More sharing options...
Longjohn ★ Posted June 12, 2021 Share #194 Posted June 12, 2021 I probably shouldn’t have bought that bike. 1 Link to comment Share on other sites More sharing options...
MickinMD ★ Posted June 12, 2021 Share #195 Posted June 12, 2021 Do they know if there's arterial blockage involved or any other thing which can improve the condition in addition to blood pressure meds, etc." Feeling for you, LJ! Link to comment Share on other sites More sharing options...
Airehead Posted June 12, 2021 Author Share #196 Posted June 12, 2021 I am not sure that I understand all the words but you are in prayers. Link to comment Share on other sites More sharing options...
Longjohn ★ Posted June 12, 2021 Share #197 Posted June 12, 2021 9 minutes ago, Airehead said: I am not sure that I understand all the words but you are in prayers. That 35% ejection fraction was what we were hoping for improvement. It didn’t change at all 3 Link to comment Share on other sites More sharing options...
Kzoo Posted June 12, 2021 Share #198 Posted June 12, 2021 2 hours ago, Longjohn said: That 35% ejection fraction was what we were hoping for improvement. It didn’t change at all Yet. 🙏 3 Link to comment Share on other sites More sharing options...
Longjohn ★ Posted June 12, 2021 Share #199 Posted June 12, 2021 57 minutes ago, Kzoo said: Yet. 🙏 Can it still improve after three months? 1 Link to comment Share on other sites More sharing options...
Kirby Posted June 12, 2021 Share #200 Posted June 12, 2021 Sorry the news isn't the results you wanted. Did they suggest any treatment steps or are they plannint to monitor this. Either way,we care and are saying prayers, so keep us posted. 1 Link to comment Share on other sites More sharing options...
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