Popular Post Zealot Posted November 10, 2021 Popular Post Share #1 Posted November 10, 2021 We were just notified that our 12 year old niece has to have a heart transplant. This is devastating news. I solemnly ask for those who pray to lift her up in prayer. We don’t have much information at the moment. But our niece is really scared. 😢 1 3 15 Link to comment Share on other sites More sharing options...
ChrisL Posted November 10, 2021 Share #2 Posted November 10, 2021 Wow sorry to hear. Prayers sent. 1 Link to comment Share on other sites More sharing options...
bikeman564™ Posted November 10, 2021 Share #3 Posted November 10, 2021 sent 1 Link to comment Share on other sites More sharing options...
maddmaxx ★ Posted November 10, 2021 Share #4 Posted November 10, 2021 Best wishes for a successful transplant and recovery. 1 Link to comment Share on other sites More sharing options...
Digital_photog ★ Posted November 10, 2021 Share #5 Posted November 10, 2021 done 1 Link to comment Share on other sites More sharing options...
jsharr ★ Posted November 10, 2021 Share #6 Posted November 10, 2021 Will be on my knees tonight lifting all ya'll up. Peace and Strength brother. 1 Link to comment Share on other sites More sharing options...
Longjohn ★ Posted November 10, 2021 Share #7 Posted November 10, 2021 Praying 1 Link to comment Share on other sites More sharing options...
Zealot Posted November 10, 2021 Author Share #8 Posted November 10, 2021 Thank you all. Link to comment Share on other sites More sharing options...
Kirby Posted November 10, 2021 Share #9 Posted November 10, 2021 She will definitely be in my prayers, along with all her family and friends. I'm sure this is incredibly scary, but I'm also glad we live in a time where these procedures are possible. 1 Link to comment Share on other sites More sharing options...
petitepedal ★ Posted November 10, 2021 Share #10 Posted November 10, 2021 You got the prayers..and virtual hugs 1 Link to comment Share on other sites More sharing options...
Parsnip Totin Jack ★ Posted November 10, 2021 Share #11 Posted November 10, 2021 Prayers for all involved. Family needs peace. 1 Link to comment Share on other sites More sharing options...
Popular Post Longjohn ★ Posted November 10, 2021 Popular Post Share #12 Posted November 10, 2021 A successful transplant would be great but I’m praying for a miraculous healing and that she won’t need the transplant. 3 3 Link to comment Share on other sites More sharing options...
Zealot Posted November 10, 2021 Author Share #13 Posted November 10, 2021 4 minutes ago, Longjohn said: A successful transplant would be great but I’m praying for a miraculous healing and that she won’t need the transplant. As am I, my friend. 2 Link to comment Share on other sites More sharing options...
Bikeguy Posted November 10, 2021 Share #14 Posted November 10, 2021 Prayers sent... 1 Link to comment Share on other sites More sharing options...
MoseySusan Posted November 11, 2021 Share #15 Posted November 11, 2021 Thanks for asking. Prayers for miracle and best possible outcomes. 1 1 Link to comment Share on other sites More sharing options...
Square Wheels Posted November 11, 2021 Share #16 Posted November 11, 2021 Wow, so young. Very sorry to hear this. So much pain in the world. 1 1 Link to comment Share on other sites More sharing options...
BuffJim Posted November 11, 2021 Share #17 Posted November 11, 2021 🙏🙏🙏 1 Link to comment Share on other sites More sharing options...
Gump Posted November 11, 2021 Share #18 Posted November 11, 2021 Praying for your niece Z. 2 Link to comment Share on other sites More sharing options...
Airehead Posted November 11, 2021 Share #19 Posted November 11, 2021 Prayers to her, the family, all who love her and the medical team. 1 Link to comment Share on other sites More sharing options...
sheep_herder ★ Posted November 11, 2021 Share #20 Posted November 11, 2021 Sorry to hear of her plight. We'll keep you all in our thoughts and prayers. 1 Link to comment Share on other sites More sharing options...
Zealot Posted November 11, 2021 Author Share #21 Posted November 11, 2021 Again, thank you all. 1 Link to comment Share on other sites More sharing options...
Zealot Posted November 11, 2021 Author Share #22 Posted November 11, 2021 Little background. She was born with one of the congenital Hand Heart syndromes, Holt Oram Syndrome, I believe. It included the upper limb deformities and a hole in her heart at birth. She had surgery then to repair the hole and has a pacemaker. As she’s aged, she’s developed asthma and has regular breathing treatments. This autumn has been rough on her. She’s been in and out of the hospital for the past several weeks with severe breathing difficulties and vomiting. She has a 10 day stay in ICU undergoing breathing treatments, tests and steroids. She’d had and ECG done in July which had shown normal. They found severe ulcers in her stomach due to H pilori infection, which they are treating her for. She was admitted to emergency again this week. They were initially going to perform a lung CT looking for a pulmonary embolism. In process they performed another ECG and found her heart is under severe stress. They are treating with Lasix currently. Her heart is diseased. The cardiologist came back in last night and stated that it’s possible that the condition is viral caused and could clear, but he doesn’t believe so. I think that that sparks a glimmer of hope though. Its a roller coaster. 4 Link to comment Share on other sites More sharing options...
Longjohn ★ Posted November 11, 2021 Share #23 Posted November 11, 2021 Thanks for the background, I was wondering but didn’t want to ask. This gives me more to pray about, thank you. 1 Link to comment Share on other sites More sharing options...
Zealot Posted November 11, 2021 Author Share #24 Posted November 11, 2021 5 minutes ago, Longjohn said: Thanks for the background, I was wondering but didn’t want to ask. This gives me more to pray about, thank you. Absolutely. You are welcome. We were in a whirlwind yesterday afternoon, so just wanted to get the prayer request out. We’re waiting for updates this morning, but it’s been silent so far. 2 Link to comment Share on other sites More sharing options...
Popular Post Zealot Posted August 29, 2022 Author Popular Post Share #25 Posted August 29, 2022 Much has transpired since I posted this last year. Long story short, after gaining some ground, things too a turn a few months ago. Her heart failure worsened and the docs started talking transplant again. During this time, her family moved back to Reno where our niece saw her original doctor. They life flighted her the Salt Lake City where they decided to keep her until they could put her on the list and a donor became available. They needed to get her pulmonary pressure down so the installed an LVA pump. It worked, the pressures have normalized and they put her on the list late last week. We just got notified that a donor is available. Things are moving fast. I ask for prayers for Chloe, her family and for the family of the donor. Such a difficult time. 2 1 10 Link to comment Share on other sites More sharing options...
petitepedal ★ Posted August 29, 2022 Share #26 Posted August 29, 2022 Will do.. 1 Link to comment Share on other sites More sharing options...
sheep_herder ★ Posted August 29, 2022 Share #27 Posted August 29, 2022 17 minutes ago, Zealot said: Much has transpired since I posted this last year. Long story short, after gaining some ground, things too a turn a few months ago. Her heart failure worsened and the docs started talking transplant again. During this time, her family moved back to Reno where our niece saw her original doctor. They life flighted her the Salt Lake City where they decided to keep her until they could put her on the list and a donor became available. They needed to get her pulmonary pressure down so the installed an LVA pump. It worked, the pressures have normalized and they put her on the list late last week. We just got notified that a donor is available. Things are moving fast. I ask for prayers for Chloe, her family and for the family of the donor. Such a difficult time. We'll keep you all in our thoughts and prayers. 1 1 Link to comment Share on other sites More sharing options...
jsharr ★ Posted August 29, 2022 Share #28 Posted August 29, 2022 On it. 1 1 Link to comment Share on other sites More sharing options...
Longjohn ★ Posted August 29, 2022 Share #29 Posted August 29, 2022 praying for Chloe 1 Link to comment Share on other sites More sharing options...
Airehead Posted August 29, 2022 Share #30 Posted August 29, 2022 Prayers for her, the family, and the doctors performing the transplant. 1 1 Link to comment Share on other sites More sharing options...
TrentonMakes Posted August 29, 2022 Share #31 Posted August 29, 2022 Seems I missed this on the first go-round.... wishing strength and healing for Chloe and her family. It sucks that things like this happen to anyone, but especially kids. 1 1 Link to comment Share on other sites More sharing options...
Parsnip Totin Jack ★ Posted August 29, 2022 Share #32 Posted August 29, 2022 Haven't stopped praying. Glad there is progress. 2 1 Link to comment Share on other sites More sharing options...
12string Posted August 29, 2022 Share #33 Posted August 29, 2022 praying. 1 1 Link to comment Share on other sites More sharing options...
Kirby Posted August 29, 2022 Share #34 Posted August 29, 2022 Prayers for Chloe, her medical team, her family and for the family of the donor. It's a blessing that something positive can come from a tragedy and I'm sure it brings some comfort to the donor family as well. 1 1 Link to comment Share on other sites More sharing options...
bikeman564™ Posted August 29, 2022 Share #35 Posted August 29, 2022 prayers & vibes sent 1 Link to comment Share on other sites More sharing options...
Gump Posted August 29, 2022 Share #36 Posted August 29, 2022 We will be praying for her! 1 Link to comment Share on other sites More sharing options...
BuffJim Posted August 29, 2022 Share #37 Posted August 29, 2022 Praying 🙏🙏🙏 1 Link to comment Share on other sites More sharing options...
Rattlecan ★ Posted August 29, 2022 Share #38 Posted August 29, 2022 Hoping for good news soon. 1 Link to comment Share on other sites More sharing options...
Digital_photog ★ Posted August 29, 2022 Share #39 Posted August 29, 2022 Praying now. 1 Link to comment Share on other sites More sharing options...
ChrisL Posted August 30, 2022 Share #40 Posted August 30, 2022 Prayers sent! 1 Link to comment Share on other sites More sharing options...
shootingstar Posted August 30, 2022 Share #41 Posted August 30, 2022 Hope for life and more happier times. 1 Link to comment Share on other sites More sharing options...
Bikeguy Posted August 30, 2022 Share #42 Posted August 30, 2022 prayers sent... 1 Link to comment Share on other sites More sharing options...
Kzoo Posted August 30, 2022 Share #43 Posted August 30, 2022 Praying for Chloe! 1 Link to comment Share on other sites More sharing options...
MoseySusan Posted August 30, 2022 Share #44 Posted August 30, 2022 Thank you for asking. Praying for abundant grace, mercy, and resources. 1 Link to comment Share on other sites More sharing options...
Ralphie ★ Posted August 30, 2022 Share #45 Posted August 30, 2022 Wow, so sad for a youngun to have to go through the wringer like this. Hoping for the best. 1 Link to comment Share on other sites More sharing options...
Zealot Posted August 30, 2022 Author Share #46 Posted August 30, 2022 Update, the donor heart is not going to be a match. When they tested her blood against the donor there was a reaction that will cause her body to reject the heart. She will be reactivated on the transplant list. 4 2 Link to comment Share on other sites More sharing options...
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