Quick Update

[Zealot]

“I must about my business be

As life moves oft into the fray.

Sweet Elysian Fields I see

Who entreat me kindly;

    And from here convey...” - Me

Just an update for anyone who is curious.  

From my charts:

Health Considerations:

Abnormal Immunological Findings in Serum - Positive ANA Panel w/ Positive SCL-70 Antibodies

Nerve Palsy Ulnar, Nerve Conduction Study 

Myalgia and Myositis, EMG – “Muscles are not quite normal”

Disturbance of Gait 

Disorder of Muscle Weakness (Generalized)

Left Ventricular Concentric Remodeling

 

Got this on Monday – “Referral to Rheumatology to evaluate and treat abnormal ANA and SCL-70 for possible Systemic Sclerosis (Scleroderma) or other condition.”

 

Have Rheumatology appt April 19

Follow-up Neurology April 20.

Two more Cardiologist testing procedures April 11and May 18, then follow-up.

 

Sheesh!! 😯 

 

Doing OK. Legs had been better early in the week. Great reprieve. But the pain and control are flaring again. And my left grip leaves a fair amount to be desired.

 

Scleroderma had never entered the realm of my thought processes/possibility. Interesting, I do have a couple recent patches of thickened skin on my nose and cheek. And some pulmonary involvement. Stuff I mentioned to my general practitioner in passing, but never thought to mention to neurology. Figured it was just age related. And may be.

 

I do not envy medical practitioners. Diagnosing idiopathic, pathological maladies seems a medical minefield. So many diseases present with mimicry; so many symptoms, protean.

 

“It may be that the gulfs will wash us down:
It may be we shall touch the Happy Isles,
And see the great Achilles, whom we knew.
Tho’ much is taken, much abides; and tho’
We are not now that strength which in old days
Moved earth and heaven, that which we are, we are;
One equal temper of heroic hearts,
Made weak by time and fate, but strong in will
To strive, to seek, to find, and not to yield.” - Tennyson

 

😊

 

Hope everyone is well.  Back after Lent. 

Peace

 

 

 

[Parsnip Totin Jack ★]

Thanks for checking in @Zealot. We will pray for you to have healing and peace. See you in April. 

[Razors Edge ★]

Keep chipping away at this and get better.  We're pulling for you, and you seem to be doing what you can to get a handle on it.  Yeah - it has to be tough (for you and the medical folks) putting the puzzle pieces together without having a clear idea of what the final picture even looks like.  You'll get there, but hopefully sooner rather than later and with a positive outcome!

[TrentonMakes]

Thanks for letting us know, Z - good to hear from you.  I hope your doctors can find the answers you need and give you a path to health.

[donkpow]

32 minutes ago, Razors Edge said:

Keep chipping away at this and get better.  We're pulling for you, and you seem to be doing what you can to get a handle on it.  Yeah - it has to be tough (for you and the medical folks) putting the puzzle pieces together without having a clear idea of what the final picture even looks like.  You'll get there, but hopefully sooner rather than later and with a positive outcome!

Those are my thoughts exactly. Get it all sorted out then you can do something about these things.

[MoseySusan]

I love Tennyson. And your own poetry. See you soon. 

[bikeman564™]

prayers & vibes sent

[Zealot]

Thanks all. Truly.  

I’m making a decision. This stuff is all too complicated. I’m diving down a rabbit hole that I attempted to,  without much success, 18 years ago. I’m driving myself nuts with the “what if’s” and “this could be this” kind of thinking. Too much info out there and if the folks who study all this for a living can’t figure it out, what makes me think I’ve any right attempting to?

I’m done. I’m going to choose to not have any disease and get back to normal.  The symptoms passed then. They’ll pass now. 

I hope. 

Peace.

[maddmaxx ★]

On 3/24/2022 at 8:10 AM, Zealot said:

“I must about my business be

As life moves oft into the fray.

Sweet Elysian Fields I see

Who entreat me kindly;

    And from here convey...” - Me

Just an update for anyone who is curious.  

From my charts:

Health Considerations:

Abnormal Immunological Findings in Serum - Positive ANA Panel w/ Positive SCL-70 Antibodies

Nerve Palsy Ulnar, Nerve Conduction Study 

Myalgia and Myositis, EMG – “Muscles are not quite normal”

Disturbance of Gait 

Disorder of Muscle Weakness (Generalized)

Left Ventricular Concentric Remodeling

 

Got this on Monday – “Referral to Rheumatology to evaluate and treat abnormal ANA and SCL-70 for possible Systemic Sclerosis (Scleroderma) or other condition.”

 

Have Rheumatology appt April 19

Follow-up Neurology April 20.

Two more Cardiologist testing procedures April 11and May 18, then follow-up.

 

Sheesh!! 😯 

 

Doing OK. Legs had been better early in the week. Great reprieve. But the pain and control are flaring again. And my left grip leaves a fair amount to be desired.

 

Scleroderma had never entered the realm of my thought processes/possibility. Interesting, I do have a couple recent patches of thickened skin on my nose and cheek. And some pulmonary involvement. Stuff I mentioned to my general practitioner in passing, but never thought to mention to neurology. Figured it was just age related. And may be.

 

I do not envy medical practitioners. Diagnosing idiopathic, pathological maladies seems a medical minefield. So many diseases present with mimicry; so many symptoms, protean.

 

“It may be that the gulfs will wash us down:
It may be we shall touch the Happy Isles,
And see the great Achilles, whom we knew.
Tho’ much is taken, much abides; and tho’
We are not now that strength which in old days
Moved earth and heaven, that which we are, we are;
One equal temper of heroic hearts,
Made weak by time and fate, but strong in will
To strive, to seek, to find, and not to yield.” - Tennyson

 

😊

 

Hope everyone is well.  Back after Lent. 

Peace

 

 

 

Stay safe.

[Prophet Zacharia]

1 hour ago, Zealot said:

I’m going to choose to not have any disease and get back to normal.  The symptoms passed then. They’ll pass now. 

We can all hope so, or maybe they can make a clear diagnosis this time and find some treatment(s) that will be helpful, in meaningful ways.

[Airehead]

Prayers will continue. 

[Kirby]

Sorry I missed this last week.  I wish your doctors discernment and I wish you peace and healing.

[Longjohn ★]

1 hour ago, Zealot said:

I’m done. I’m going to choose to not have any disease and get back to normal.  The symptoms passed then. They’ll pass now. 

I hope. 

Life and death are in the power of the tongue. Proverbs 18:21

[petitepedal ★]

Prayers and hugs continue