Dirtyhip Posted June 24, 2014 Share #1 Posted June 24, 2014 MA said that none of my lesions were active. I will ask about clinical significance at my next appointment. I don't like playing telephone about this. If the old med wasn't working, and I was developing new damage, then I am glad I am on a stronger one. I am calling the imaging place to get a copy of my scans. I will post pics, if I can figure it out. They come on a disc. Link to comment Share on other sites More sharing options...
Square Wheels Posted June 24, 2014 Share #2 Posted June 24, 2014 That sounds promising. If you want to post the pics and can't, send me the files and I'll see if I can convert them for you. I PM'd you my email. Link to comment Share on other sites More sharing options...
Dirtyhip Posted June 24, 2014 Author Share #3 Posted June 24, 2014 That sounds promising. If you want to post the pics and can't, send me the files and I'll see if I can convert them for you. I PM'd you my email. You phucking ROCK! Link to comment Share on other sites More sharing options...
Square Wheels Posted June 24, 2014 Share #4 Posted June 24, 2014 You phucking ROCK! I have no idea why, but this made me chuckle. 1 Link to comment Share on other sites More sharing options...
Dirtyhip Posted June 24, 2014 Author Share #5 Posted June 24, 2014 I was talking to my man about the results, yesterday. I was irritated about the progression. I said to him "How many healthy people are as active as I am?" He said "not many" but, I guess this isn't the question here. The question is prognosis, Long term prognosis. Link to comment Share on other sites More sharing options...
petitepedal ★ Posted June 24, 2014 Share #6 Posted June 24, 2014 Sounds good..you are being pro-active and asking the right questions. Link to comment Share on other sites More sharing options...
Square Wheels Posted June 24, 2014 Share #7 Posted June 24, 2014 Don't look at it that way. There is now and there is long term prognosis. You already know what the long term prognosis is likely to be, focus on how strong you are today. 1 Link to comment Share on other sites More sharing options...
Dirtyhip Posted June 24, 2014 Author Share #8 Posted June 24, 2014 You already know what the long term prognosis is likely to be I refuse to accept that all MS patients will be less ambulatory in the long term. 4 Link to comment Share on other sites More sharing options...
Square Wheels Posted June 24, 2014 Share #9 Posted June 24, 2014 I refuse to accept that all MS patients will be less ambulatory in the long term. That's one of the reasons so many people find you inspiring. 1 Link to comment Share on other sites More sharing options...
Dirtyhip Posted June 24, 2014 Author Share #10 Posted June 24, 2014 That's one of the reasons so many people find you inspiring. My tactic is to believe myself strong and healthy. and thanks for the compliment. Back to normal today. It seems to me that this news may not be as bad as I thought. My mobility is pretty darn good. Much better than most. I have had MS for over ten years. I am doing basically the same things I was before, with slight modification with excessive strain and heat. I closed the chapter on the MTB century. It's just not in the cards for me. I can't seem to get past 60 MTB miles without some symptoms and problems. 1 Link to comment Share on other sites More sharing options...
az_cyclist Posted June 24, 2014 Share #11 Posted June 24, 2014 Your approach is inspiring, DH ! keep up the good fight! Link to comment Share on other sites More sharing options...
Pokey Posted June 25, 2014 Share #12 Posted June 25, 2014 DH...you should be the poster child for attitude and living a pro-active life. AZ_cyclist is correct...you do inspire. Link to comment Share on other sites More sharing options...
SuzieQ Posted June 25, 2014 Share #13 Posted June 25, 2014 I believe your tactic is a good one! I don't see you every slowing down for anything! I have two MS students who are of the same mind frame as you. They really don't let it get them down and keep doing everything they love. In yoga it can be very challenging with all the balance, but they both persist and one has a good sense of humor as well which helps. Link to comment Share on other sites More sharing options...
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