Airehead Posted May 19, 2021 Author Share #101 Posted May 19, 2021 1 hour ago, Longjohn said: Guess where I am now? Having more bloodwork done at the cancer care center in NewCastle. Out patient or in-patient with gourmet meals? Link to comment Share on other sites More sharing options...
Popular Post Razors Edge ★ Posted May 19, 2021 Popular Post Share #102 Posted May 19, 2021 1 hour ago, Longjohn said: Guess where I am now? Having more bloodwork done at the cancer care center in NewCastle. Darn it! I want to use multiple emojis! A because you are being cared for and looked at. The hug one because you have been through tons the past couple years and deserve the hugs. And a sad face because I hate seeing it take so much of your time and effort and willpower to go through this whole ordeal. 6 Link to comment Share on other sites More sharing options...
Airehead Posted May 19, 2021 Author Share #103 Posted May 19, 2021 54 minutes ago, Razors Edge said: Darn it! I want to use multiple emojis! A because you are being cared for and looked at. The hug one because you have been through tons the past couple years and deserve the hugs. And a sad face because I hate seeing it take so much of your time and effort and willpower to go through this whole ordeal. Well said Link to comment Share on other sites More sharing options...
Popular Post Longjohn ★ Posted May 19, 2021 Popular Post Share #104 Posted May 19, 2021 Tomorrow I have an appointment with my PCP. I had a phone call today from the nurse practitioner that I saw last Friday. She is the one that called the wambulance for me. The people in the waiting room looked shocked. They saw me walk in under my own power and a few minutes later get wheeled out in an ambulance. I probably couldn’t have driven home, I was out of gas. She was just checking to see how I’m doing. 3 2 Link to comment Share on other sites More sharing options...
Airehead Posted May 20, 2021 Author Share #105 Posted May 20, 2021 How are you doing? 1 Link to comment Share on other sites More sharing options...
Further Posted May 20, 2021 Share #106 Posted May 20, 2021 So where you at ? Hospital or home ? Man you're like whack a mole, just keep popping up all over the board. Hoping you're home and settled in 1 2 Link to comment Share on other sites More sharing options...
Popular Post Longjohn ★ Posted May 20, 2021 Popular Post Share #107 Posted May 20, 2021 9 hours ago, Further said: So where you at ? Hospital or home ? Man you're like whack a mole, just keep popping up all over the board. Hoping you're home and settled in I’m home. I don’t have any energy. I still have doctor appointments about every day. Yesterday I mowed the front yard. When my wife passed I hit the ground with all wheels spinning getting rid of stuff, this blood count thing has me stalled out. I’m going to have to downsize if I live that long. This is not how I expected life to be after Esther. 3 8 Link to comment Share on other sites More sharing options...
Popular Post Airehead Posted May 20, 2021 Author Popular Post Share #108 Posted May 20, 2021 33 minutes ago, Longjohn said: I’m home. I don’t have any energy. I still have doctor appointments about every day. Yesterday I mowed the front yard. When my wife passed I hit the ground with all wheels spinning getting rid of stuff, this blood count thing has me stalled out. I’m going to have to downsize if I live that long. This is not how I expected life to be after Esther. Much love to you and prayers. Consider this a rest. Not an indicator of the future. You worked so hard caring for Esther. Now some rest and taking care of you. Then a great adventure. To all things there is a season. 1 6 Link to comment Share on other sites More sharing options...
Dottleshead ★ Posted May 21, 2021 Share #109 Posted May 21, 2021 20 hours ago, Longjohn said: I’m home. I don’t have any energy. I still have doctor appointments about every day. Yesterday I mowed the front yard. When my wife passed I hit the ground with all wheels spinning getting rid of stuff, this blood count thing has me stalled out. I’m going to have to downsize if I live that long. This is not how I expected life to be after Esther. I know. But being a rockstar isn't for all of us. In all seriousness, you have many reasons to keep on living, John. You send photos of them all the time. 2 1 Link to comment Share on other sites More sharing options...
Popular Post Kirby Posted May 21, 2021 Popular Post Share #110 Posted May 21, 2021 As Aire mentions, there has been so much going on and so many stressful things. You just need some time to relax and take care of yourself now and not worry about long term plans But it is never good to make decisions during times of stress, and this is definitely a time of stress. Be kind to yourself, don't expect anything of yourself for now and know that you have family and friends who care \, We may be imaginary but our love and concern is real. 4 1 Link to comment Share on other sites More sharing options...
Dottleshead ★ Posted May 21, 2021 Share #111 Posted May 21, 2021 31 minutes ago, Kirby said: As Aire mentions, there has been so much going on and so many stressful things. You just need some time to relax and take care of yourself now and not worry about long term plans But it is never good to make decisions during times of stress, and this is definitely a time of stress. Be kind to yourself, don't expect anything of yourself for now and know that you have family and friends who care \, We may be imaginary but our love and concern is real. This @Longjohn 1 Link to comment Share on other sites More sharing options...
Randomguy Posted May 25, 2021 Share #112 Posted May 25, 2021 On 5/20/2021 at 7:50 AM, Longjohn said: I still have doctor appointments about every day. Any updates? Link to comment Share on other sites More sharing options...
Popular Post Longjohn ★ Posted May 25, 2021 Popular Post Share #113 Posted May 25, 2021 2 minutes ago, Randomguy said: Any updates? Not yet, having another echo tomorrow, an oncology exam, and another doctor appointment nex Wednesday. Maybe I should give those sloth socks a break? That might be what is making me move so slow? 2 2 2 Link to comment Share on other sites More sharing options...
Longjohn ★ Posted May 25, 2021 Share #114 Posted May 25, 2021 My hematologist said I have a lot of Smudge cells in my blood. That’s a new term on me. I knew I had lots of defective white cells, never heard them called smudge cells before. 3 Link to comment Share on other sites More sharing options...
Airehead Posted May 25, 2021 Author Share #115 Posted May 25, 2021 @Longjohn, when will they start talking about treatment options??? Link to comment Share on other sites More sharing options...
Kzoo Posted May 25, 2021 Share #116 Posted May 25, 2021 25 minutes ago, Longjohn said: My hematologist said I have a lot of Smudge cells in my blood. I just did extensive medical research... I UTG. Maybe you have mono. I did as a senior in HS but I don't know if is had @smudge cells. Link to comment Share on other sites More sharing options...
Popular Post Longjohn ★ Posted May 25, 2021 Popular Post Share #117 Posted May 25, 2021 2 minutes ago, Kzoo said: I just did extensive medical research... I UTG. Maybe you have mono. I did as a senior in HS but I don't know if is had @smudge cells. I had mono about 1972. I was sick as a dog for over a week. Forced myself to go to work anyway. Finally went to the doctor, he ran some tests and told me I had mono. He told me to stay home from work for a week. I was starting to feel better by then so I spent the week rebuilding the engine in my hippy van. 6 Link to comment Share on other sites More sharing options...
Randomguy Posted May 25, 2021 Share #118 Posted May 25, 2021 26 minutes ago, Longjohn said: I had mono about 1972. I was sick as a dog for over a week. Forced myself to go to work anyway. Finally went to the doctor, he ran some tests and told me I had mono. He told me to stay home from work for a week. I was starting to feel better by then so I spent the week rebuilding the engine in my hippy van. I got mono in college and had to drop all my classes and ended up in the hospital for more than a week. I lost 25 pounds and started at 150. I got huge random infections for at least 6 months after, too. All in all, I don't recommend mono. 1 2 Link to comment Share on other sites More sharing options...
Longjohn ★ Posted May 25, 2021 Share #119 Posted May 25, 2021 7 minutes ago, Randomguy said: I got mono in college and had to drop all my classes and ended up in the hospital for more than a week. I lost 25 pounds and started at 150. I got huge random infections for at least 6 months after, too. All in all, I don't recommend mono. I had a friend that had it and was sick for six months. My immune system must have been good in those days. 2 Link to comment Share on other sites More sharing options...
Popular Post Razors Edge ★ Posted May 25, 2021 Popular Post Share #120 Posted May 25, 2021 1 hour ago, Randomguy said: I got mono in college and had to drop all my classes and ended up in the hospital for more than a week. I lost 25 pounds and started at 150. I got huge random infections for at least 6 months after, too. All in all, I don't recommend mono. Sounds more like the clap. You had the clap. 5 Link to comment Share on other sites More sharing options...
Kzoo Posted May 25, 2021 Share #121 Posted May 25, 2021 1 minute ago, Razors Edge said: Sounds more like the clap. You had the clap. Nominated. 1 Link to comment Share on other sites More sharing options...
Popular Post maddmaxx ★ Posted May 25, 2021 Popular Post Share #122 Posted May 25, 2021 2 hours ago, Longjohn said: My hematologist said I have a lot of Smudge cells in my blood. That’s a new term on me. I knew I had lots of defective white cells, never heard them called smudge cells before. Do you feel a sudden urge to buy tools? 1 1 3 Link to comment Share on other sites More sharing options...
Rattlecan ★ Posted May 25, 2021 Share #123 Posted May 25, 2021 2 hours ago, Longjohn said: so I spent the week rebuilding the engine in my hippy van. Hippie van motors shouldn't take a week. What else were ya doin? 1 1 Link to comment Share on other sites More sharing options...
Randomguy Posted May 25, 2021 Share #124 Posted May 25, 2021 3 hours ago, Airehead said: @Longjohn, when will they start talking about treatment options??? Better than casket options! Stick around and enjoy the new bike, LJ! 2 Link to comment Share on other sites More sharing options...
Longjohn ★ Posted May 25, 2021 Share #125 Posted May 25, 2021 1 hour ago, Rattlecan said: Hippie van motors shouldn't take a week. What else were ya doin? This wasn’t a Vee Dub hippy wagon, I got one of those after I had kids. This was a Chevy Forward control with the engine beside the driver’s seat. I sat on a Coleman cooler full of beer while working on it. I knew I had the whole week off. I had two stereo systems in the van. I wasn’t in any hurry. 3 Link to comment Share on other sites More sharing options...
Ralphie ★ Posted May 25, 2021 Share #126 Posted May 25, 2021 3 hours ago, Randomguy said: I got mono in college and had to drop all my classes and ended up in the hospital for more than a week. I lost 25 pounds and started at 150. I got huge random infections for at least 6 months after, too. All in all, I don't recommend mono. I sweated more than I ever have for aboot a week. All isolated in the college infirmary. The nurses changed the bedding many times for me. 1 Link to comment Share on other sites More sharing options...
Popular Post smudge ★ Posted May 25, 2021 Popular Post Share #127 Posted May 25, 2021 6 hours ago, Longjohn said: My hematologist said I have a lot of Smudge cells in my blood. That’s a new term on me. I knew I had lots of defective white cells, never heard them called smudge cells before. Geez, now I feel like I should change my name to schmuck! 1 6 Link to comment Share on other sites More sharing options...
Dottleshead ★ Posted May 26, 2021 Share #128 Posted May 26, 2021 7 hours ago, Razors Edge said: Sounds more like the clap. You had the clap. I don't recommend that either. Link to comment Share on other sites More sharing options...
Ralphie ★ Posted May 26, 2021 Share #129 Posted May 26, 2021 7 hours ago, Razors Edge said: Sounds more like the clap. You had the clap. Oh shut up, Bucky! Link to comment Share on other sites More sharing options...
Longjohn ★ Posted May 26, 2021 Share #130 Posted May 26, 2021 Whelp this heart monitor isn’t any better than the ones I had to wear in the horse spittle. I have wires attached to me, a big sensor that hangs around my neck with the wires attached to it and a cellphone device type thing that I have to keep within ten feet of me at all times. If an alarm goes off I have to answer the questions it asks me. No swimming until the end of June. 5 1 Link to comment Share on other sites More sharing options...
Randomguy Posted May 26, 2021 Share #131 Posted May 26, 2021 14 minutes ago, Longjohn said: Whelp this heart monitor isn’t any better than the ones I had to wear in the horse spittle. I have wires attached to me, a big sensor that hangs around my neck with the wires attached to it and a cellphone device type thing that I have to keep within ten feet of me at all times. If an alarm goes off I have to answer the questions it asks me. No swimming until the end of June. Why do you have this monitor? What about your blood? (asking for a vampire friend) 1 Link to comment Share on other sites More sharing options...
Longjohn ★ Posted May 26, 2021 Share #132 Posted May 26, 2021 1 hour ago, Randomguy said: Why do you have this monitor? What about your blood? (asking for a vampire friend) Good question, I think the life vest people are in cahoots with them. The life vest people said “we got him for $750 before he got wise to us, see how much you can get him for.” 2 1 Link to comment Share on other sites More sharing options...
Popular Post maddmaxx ★ Posted May 27, 2021 Popular Post Share #133 Posted May 27, 2021 Why didn't they use the usual monitor attached around your ankle? 1 1 3 Link to comment Share on other sites More sharing options...
Airehead Posted May 27, 2021 Author Share #134 Posted May 27, 2021 When do you see a doctor again? Link to comment Share on other sites More sharing options...
Longjohn ★ Posted May 27, 2021 Share #135 Posted May 27, 2021 4 minutes ago, Airehead said: When do you see a doctor again? I have appointments next Wednesday and two appointments on Thursday. The one early on Thursday is with my oncologist and is marked EXAM and highlighted. Never saw that on my appointment notice before. They must be looking for something. 1 Link to comment Share on other sites More sharing options...
Airehead Posted May 27, 2021 Author Share #136 Posted May 27, 2021 1 minute ago, Longjohn said: I have appointments next Wednesday and two appointments on Thursday. The one early on Thursday is with my oncologist and is marked EXAM and highlighted. Never saw that on my appointment notice before. They must be looking for something. Ok, I will try to be patient. I want your plan of conquering this to be written and executed as quickly as possible. Link to comment Share on other sites More sharing options...
Popular Post Longjohn ★ Posted May 27, 2021 Popular Post Share #137 Posted May 27, 2021 With this monitor I’m not allowed to go swimming but I am allowed to pull the wires off and take a bath. I have a 28’ bathtub off the back deck. I wonder if I should use colored sharpies to mark my skin where each colored wire is supposed to go? 3 2 Link to comment Share on other sites More sharing options...
Kzoo Posted May 27, 2021 Share #138 Posted May 27, 2021 20 minutes ago, Longjohn said: and is marked EXAM and highlighted. Make sure study, get a good nights sleep the night before and get a good breakfast. Ands remember to write your name at the top of the exam sheet. 2 2 Link to comment Share on other sites More sharing options...
Longjohn ★ Posted May 27, 2021 Share #139 Posted May 27, 2021 2 minutes ago, Kzoo said: Make sure study, get a good nights sleep the night before and get a good breakfast. Ands remember to write your name at the top of the exam sheet. I remember when I was first diagnosed the checkups always involved a lot of groping and prodding by the doctor. Over the years they evolved into mostly lab reports and asking me questions. 1 Link to comment Share on other sites More sharing options...
Airehead Posted May 27, 2021 Author Share #140 Posted May 27, 2021 1 hour ago, Longjohn said: With this monitor I’m not allowed to go swimming but I am allowed to pull the wires off and take a bath. I have a 28’ bathtub off the back deck. I wonder if I should use colored sharpies to mark my skin where each colored wire is supposed to go? yes to the sharpies 1 Link to comment Share on other sites More sharing options...
Longjohn ★ Posted May 28, 2021 Share #141 Posted May 28, 2021 Well I never got around to marking the placement of the wires with a sharpie. When I got up this morning all the wires were hanging from the lanyard and had come off during the night. The monitor never made a sound. While all the electrodes were off I took a nice long shower. I got out the book that came with the monitor and tried to figure out electrode placement. After I got them all on the monitor started beeping telling me to check the electrode contacts. They are all on and stuck on tight so I don’t know what they want. The booklet said if I return the device damaged I will be charged $2,200. I think this thing is another scam. 2 Link to comment Share on other sites More sharing options...
Airehead Posted May 28, 2021 Author Share #142 Posted May 28, 2021 Oh dear. Call your doctors office 3 Link to comment Share on other sites More sharing options...
smudge ★ Posted May 28, 2021 Share #143 Posted May 28, 2021 And I'll call the pizza delivery guy and the local bakery. Send a couple larges and a baker's dozen to @Longjohn STAT!! OOH, I'll call the brewery to send a keg to wash it down. 4 Link to comment Share on other sites More sharing options...
Longjohn ★ Posted May 28, 2021 Share #144 Posted May 28, 2021 1 minute ago, smudge said: And I'll call the pizza delivery guy and the local bakery. Send a couple larges and a baker's dozen to @Longjohn STAT!! OOH, I'll call the brewery to send a keg to wash it down. I should go back to taking pictures of my meals. If you had seen everything I ate the last three days you wouldn’t think it possible I’m unable to gain weight. I have to admit pizza and beer sounds better. I had salmon, potatoes, red bell pepper, a large sweet onion, mushrooms, and carrots. All cooked in olive oil. Washed it down with a bottle of boost. 4 Link to comment Share on other sites More sharing options...
Ralphie ★ Posted May 28, 2021 Share #145 Posted May 28, 2021 6 minutes ago, Longjohn said: I should go back to taking pictures of my meals. If you had seen everything I ate the last three days you wouldn’t think it possible I’m unable to gain weight. I have to admit pizza and beer sounds better. I had salmon, potatoes, red bell pepper, a large sweet onion, mushrooms, and carrots. All cooked in olive oil. Washed it down with a bottle of boost. Beer works for me! Link to comment Share on other sites More sharing options...
Longjohn ★ Posted May 28, 2021 Share #146 Posted May 28, 2021 41 minutes ago, Philander Seabury said: Beer works for me! Owl have to ask my doctor about that. She probably won’t ok enough to gain weight. 1 Link to comment Share on other sites More sharing options...
Sharpy Posted May 28, 2021 Share #147 Posted May 28, 2021 Donuts and lasagna 1 Link to comment Share on other sites More sharing options...
Dirtyhip Posted May 28, 2021 Share #148 Posted May 28, 2021 Keep eating that meat. You need to build back tissue. I agree with Sharpy to add some pasta or breads. 1 Link to comment Share on other sites More sharing options...
Popular Post Longjohn ★ Posted May 29, 2021 Popular Post Share #149 Posted May 29, 2021 I should be able to climb hills now. Upper body looks like TDF mountain man. Problem is lower body looks the same 3 3 Link to comment Share on other sites More sharing options...
bikeman564™ Posted May 29, 2021 Share #150 Posted May 29, 2021 On 5/25/2021 at 1:49 PM, Randomguy said: All in all, I don't recommend mono. stereo is better 3 1 Link to comment Share on other sites More sharing options...
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