Popular Post BuffJim Posted June 20, 2022 Popular Post Share #1 Posted June 20, 2022 My lungs have been declining for past several months. Grrr. Not sure what the cause is. My doctor cut back on my meds in April, but that’s when I noticed the decline. I had enough in reserve for several months, so I went back to the old regime with 3 meds, Trelegy, instead of two, Breo. I can still walk 10,000 steps a day, but anything more strenuous is probably a No. I have a PFT, pulmonary function test, next week and a Pulmonologist appointment July 12th, so I won’t try to accelerate those unless they get drastically worse. I was hoping the 3 years of relative stability I’ve just had would continue. 6 18 Link to comment Share on other sites More sharing options...
Wilbur ★ Posted June 20, 2022 Share #2 Posted June 20, 2022 Respiratory conditions are the worst. Any chance the seasonal aspect is a player? It is a particularly bad allergy year. 3 Link to comment Share on other sites More sharing options...
Further Posted June 20, 2022 Share #3 Posted June 20, 2022 I hope they can make an adjustment and you will improve Pullin for ya 1 1 Link to comment Share on other sites More sharing options...
bikeman564™ Posted June 20, 2022 Share #4 Posted June 20, 2022 prayers & vibes sent 1 1 Link to comment Share on other sites More sharing options...
Kirby Posted June 20, 2022 Share #5 Posted June 20, 2022 Hope they are able to figure out the cause and find a treatment that works well for you. Keep us posted. Medical stuff is always worrying. 2 1 Link to comment Share on other sites More sharing options...
jsharr ★ Posted June 20, 2022 Share #6 Posted June 20, 2022 Praying for you Jim. 1 1 Link to comment Share on other sites More sharing options...
Airehead Posted June 20, 2022 Share #7 Posted June 20, 2022 18 minutes ago, Wilbur said: Respiratory conditions are the worst. Any chance the seasonal aspect is a player? It is a particularly bad allergy year. I was wondering the same. Especially since I am sitting at the gunsmith waiting on an adjustment to my new gun. I am watching my car get covered in cottonwood pollen. 3 Link to comment Share on other sites More sharing options...
smudge ★ Posted June 20, 2022 Share #8 Posted June 20, 2022 2 minutes ago, Airehead said: I was wondering the same. Especially since I am sitting at the gunsmith waiting on an adjustment to my new gun. I am watching my car get covered in cottonwood pollen. And my red truck always has a dusting of yellow (pollen). Take care Jim. We need our weather reports! 1 1 1 Link to comment Share on other sites More sharing options...
petitepedal ★ Posted June 20, 2022 Share #9 Posted June 20, 2022 Good luck with your test..study hard ..prayers going out for you. 1 1 Link to comment Share on other sites More sharing options...
Wilbur ★ Posted June 20, 2022 Share #10 Posted June 20, 2022 3 minutes ago, petitepedal said: .study hard 1 Link to comment Share on other sites More sharing options...
BuffJim Posted June 20, 2022 Author Share #11 Posted June 20, 2022 34 minutes ago, Airehead said: I was wondering the same. Especially since I am sitting at the gunsmith waiting on an adjustment to my new gun. I am watching my car get covered in cottonwood pollen. Possible but I doubt it. I typically would have other symptoms with allergic reactions. Like drippy nose, itchy eyes. 1 Link to comment Share on other sites More sharing options...
BuffJim Posted June 20, 2022 Author Share #12 Posted June 20, 2022 28 minutes ago, petitepedal said: Good luck with your test..study hard ..prayers going out for you. In the best of times this test makes me exhale so hard I see stars. 2 1 1 Link to comment Share on other sites More sharing options...
Airehead Posted June 20, 2022 Share #13 Posted June 20, 2022 4 minutes ago, BuffJim said: Possible but I doubt it. I typically would have other symptoms with allergic reactions. Like drippy nose, itchy eyes. True 1 Link to comment Share on other sites More sharing options...
MickinMD ★ Posted June 20, 2022 Share #14 Posted June 20, 2022 6 hours ago, Airehead said: I was wondering the same. Especially since I am sitting at the gunsmith waiting on an adjustment to my new gun. I am watching my car get covered in cottonwood pollen. I took Jake for our first two mile walk in June yesterday along a woodsy and pasture lined trail with AccuWeather reporting poor air quality. I have a small particle allergy. I took a generic Zyrtec before going but woke up this AM with a slight sore throat and stuffy nose, that has been going away as I stayed inside all day today. I think I've got to acclimatize myself to the woods. 2 Link to comment Share on other sites More sharing options...
Ralphie ★ Posted June 20, 2022 Share #15 Posted June 20, 2022 7 hours ago, BuffJim said: In the best of times this test makes me exhale so hard I see stars. Yes, those tests are universally dreaded. 2 1 Link to comment Share on other sites More sharing options...
Razors Edge ★ Posted June 21, 2022 Share #16 Posted June 21, 2022 Well, we really like having you around, and hope you can get a handle on all of it. You're another one of our forum "toughies", so we have faith you can persevere. Link to comment Share on other sites More sharing options...
Popular Post BuffJim Posted July 12, 2022 Author Popular Post Share #17 Posted July 12, 2022 Update: Pretty Good news. He thinks it’s asthma related. Prescribed a short term run of Prednisone and reinstated the Trelegy. He doesn’t think my worsening symptoms are consistent with Embolism or a worsening of the Pulmonary Fibrosis. He said the Pulmonary Function Test I took 2 weeks ago didn’t show a decline, it was relatively stable. He also encouraged me to be more mindful about holding my inhaled medicine a full 8 seconds. Hope he’s right. I go back early October. 5 7 5 Link to comment Share on other sites More sharing options...
Kzoo Posted July 12, 2022 Share #18 Posted July 12, 2022 Good to hear good news. 1 Link to comment Share on other sites More sharing options...
Wilbur ★ Posted July 12, 2022 Share #19 Posted July 12, 2022 23 minutes ago, BuffJim said: Update: Pretty Good news. He thinks it’s asthma related. Prescribed a short term run of Prednisone and reinstated the Trelegy. He doesn’t think my worsening symptoms are consistent with Embolism or a worsening of the Pulmonary Fibrosis. He said the Pulmonary Function Test I took 2 weeks ago didn’t show a decline, it was relatively stable. He also encouraged me to be more mindful about holding my inhaled medicine a full 8 seconds. Hope he’s right. I go back early October. Excellent! How long will you be on prednisone? 1 Link to comment Share on other sites More sharing options...
Kirby Posted July 12, 2022 Share #20 Posted July 12, 2022 This sounds like the best possible news for this visit. I hope the revised medicines help. 1 Link to comment Share on other sites More sharing options...
BuffJim Posted July 12, 2022 Author Share #21 Posted July 12, 2022 20 minutes ago, Wilbur said: Excellent! How long will you be on prednisone? Probably a 5 day tapered course. It’s not good for blood sugar scores so they are sparing with it. 2 Link to comment Share on other sites More sharing options...
Wilbur ★ Posted July 12, 2022 Share #22 Posted July 12, 2022 2 minutes ago, BuffJim said: Probably a 5 day tapered course. It’s not good for blood sugar scores so they are sparing with it. It isn't a "good for you" drug for sure but it sure helps turn the corner on respiratory and sinus inflammations. 1 Link to comment Share on other sites More sharing options...
Zealot Posted July 12, 2022 Share #23 Posted July 12, 2022 On 6/20/2022 at 11:19 AM, BuffJim said: In the best of times this test makes me exhale so hard I see stars. Yep, this. Had my first one on June 29. I almost passed out; got tunnel vision, the works. Surprised me. Good luck. Payers for pulmonary stability and healing. 2 1 Link to comment Share on other sites More sharing options...
Scrapr ★ Posted July 12, 2022 Share #24 Posted July 12, 2022 1 hour ago, Wilbur said: It isn't a "good for you" drug for sure but it sure helps turn the corner on respiratory and sinus inflammations. I was on the pred for a month or more. After a period of time I was very irritable. To the point I was throwing my phone when I was frustrated at work. My office mate mentioned it. It will mess you up 2 Link to comment Share on other sites More sharing options...
Road Runner Posted July 12, 2022 Share #25 Posted July 12, 2022 1 hour ago, BuffJim said: Probably a 5 day tapered course. It’s not good for blood sugar scores so they are sparing with it. I just finished that yesterday. Methylprednisolone. For my injured spine. It helped quite a bit. Now I am starting Meloxicam to help keep the inflammation down. 1 Link to comment Share on other sites More sharing options...
BuffJim Posted July 13, 2022 Author Share #26 Posted July 13, 2022 On 7/12/2022 at 10:52 AM, BuffJim said: Probably a 5 day tapered course. It’s not good for blood sugar scores so they are sparing with it. So, starting peeing every hour or less this afternoon. Checked my blood sugar. One piece of pizza and a cup of chicken corn chowder with celery sticks for lunch. With cherries for my daily fruit. At 3 pm it was 454 Eeek 4pm it was 380. A little better but still Eeek. 6 PM 271. Out of the danger zone, but still high. No carbs to speak of tonight. Tomorrow and Friday’s dose is 20 mg per day. It was 30 mg the last two days. Saturday and Sunday 10 mg. Then I’m done. But I’m enjoying being able to breathe. 1 2 Link to comment Share on other sites More sharing options...
Airehead Posted July 13, 2022 Share #27 Posted July 13, 2022 So glad the news is mostly good keep updating us. 1 Link to comment Share on other sites More sharing options...
JerrySTL ★ Posted July 13, 2022 Share #28 Posted July 13, 2022 On 6/20/2022 at 10:19 AM, BuffJim said: In the best of times this test makes me exhale so hard I see stars. When I took that test, I exhaled so hard that I passed out. The technician caught me and pushed me back into the booth. I still failed and use an inhaler twice a day. 1 1 Link to comment Share on other sites More sharing options...
Ralphie ★ Posted July 14, 2022 Share #29 Posted July 14, 2022 59 minutes ago, JerrySTL said: When I took that test, I exhaled so hard that I passed out. The technician caught me and pushed me back into the booth. I still failed and use an inhaler twice a day. And yet you ride millions of miles on the bike. Excellent. 1 Link to comment Share on other sites More sharing options...
MickinMD ★ Posted July 14, 2022 Share #30 Posted July 14, 2022 On 6/20/2022 at 10:14 AM, BuffJim said: My lungs have been declining for past several months. Grrr. Not sure what the cause is. My doctor cut back on my meds in April, but that’s when I noticed the decline. I had enough in reserve for several months, so I went back to the old regime with 3 meds, Trelegy, instead of two, Breo. I can still walk 10,000 steps a day, but anything more strenuous is probably a No. I have a PFT, pulmonary function test, next week and a Pulmonologist appointment July 12th, so I won’t try to accelerate those unless they get drastically worse. I was hoping the 3 years of relative stability I’ve just had would continue. Wishing the best for you. You never know when a new procedure and/or medicine will be developed to help, so hang in there. My BiL was cured of a similar cancer condition 19 years after Johns Hopkins Hospital accurately informed our family that our mother would be dead in 9 months. Hopefully progress also occurs with treating your condition. 1 Link to comment Share on other sites More sharing options...
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